VIDEO INTERVIEW | Ivana Atanasovska: The red alarm is on because there are patients with cystic fibrosis who are in a life-threatening condition

The pill "Trikafta" or "Caftrio" it contains three drugs and helps 80 to 90 percent of patients with cystic fibrosis, that is, all those who have one of the most common mutations "Delta f508". This medicine, which patients with cystic fibrosis have been asking for for a long time from the Ministry of Health, helps patients already in the first four days, and a large part of patients who were on oxygen support or before transplantation are already in good or stable health and do not need from regular hospitalizations or antibiotics they used before. In children, it works so positively that it even erases the disease in some way.

Ivana Atanasovska, the president of the Association for Cystic Fibrosis, in a visit to Utrinski Pechat, says that they are amazed by the ignorant attitude of the entire health sector towards their requests to solve the problems.

They are the only people who manage these things and from whom we can ask to solve that problem. We feel as if we are a country with institutions that are not in charge because no matter where we turn, no one is in charge. So far, we have addressed the Parliament, the Health Commission, the Ministry of Health and Finance and we have not received an answer that something has been done and that there is progress, says Atanasovska.

He adds that the countries of the region such as Bulgaria, Greece, Serbia and Montenegro have already provided this therapy for patients and said that "red alert" is already involved because there are patients in a life-threatening condition and with each ringing of one of their parents, Atanasovska says that she is in suspense as to what news she will receive.

On February 4, a protest was announced in front of the Government

Atanasovska appeals that they are only looking for the first, because they are patients who have no medicine, and the only thing they want is for things to start working and for not a single life to be lost.

Provision of modulatory therapy as soon as possible to save patients at risk, but also for all those who respond to therapy. The second request is to provide conditions for hospitalization of patients with complete teams to treat this problem and thirdly, the Fund provides the aids that are necessary for patients, such as inhalers and Pep/Flutter, aids that draw out the thick secretion and they purify the lungs, Atanasovska pointed out.

In the country, there are about 130 to 140 patients with cystic fibrosis, depending on the newly diagnosed ones. As the President of the Association stated, at birth testing is done for several diseases, including cystic fibrosis, and she says that this is something that is for the health because it can greatly improve life expectancy with timely detection.


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