Under the motto "Breathe for CF", today the Cystic Fibrosis Association organized the first event on the occasion of the European Cystic Fibrosis Awareness Day. – This is the first event of an open type so that all those who want to give their support can join. We spent a great day, from Sredno Vodno we climbed to...
Organized event on the occasion of European Cystic Fibrosis Awareness Day Read More »
There is still no doubt that 120 patients with cystic fibrosis will receive the life-saving drug "Trikafta", which the government promised to provide them in stages. Instead, legislative changes are on the agenda in the Parliament, with which patients with cystic fibrosis over 26 years of age will no longer have to pay for all their medicines out of their own pockets, but...
Negotiations are currently underway with the manufacturer of the drug "Trikafta". The commission at the Ministry of Health, in charge of its procurement, assured us that as many patients as possible will receive the medicine with this first intervention procurement. The intervention import depends on the manufacturer of the drug, I think that the period they said is about thirty days, he informed today about...
Aleksandar Josifoski is a 17-year-old high school student from Tetovo who has been living with cystic fibrosis since he was eight months old. It is a multisystem genetic disease that occurs due to a defect in the CFTR protein, which affects the lungs, pancreas, and other organs. Alexander's parents have been fighting ever since the diagnosis of the disease of...
The Cystic Fibrosis Association today sent an open letter to the authorities asking them to provide adequate therapy for patients suffering from this disease, as well as to provide medical aids that are necessary for every patient in daily therapy. "The state should immediately provide funds for the introduction of modulatory therapy according to the principle of all European and...
