A Canadian family travels the world before their three children lose their sight
A Canadian family of six decided to travel around the world before three of their four children lost their sight completely due to a rare genetic disease.
The parents discovered their eldest daughter Mia Lemay-Pelletier had retinitis pigmentosa – which could leave her completely blind by her 30s – after she started having difficulty seeing at night in 2018.
The following year, her brothers Colin and Laurent were diagnosed with the same disease, but second-born Leo still wasn't.
Mother Edith Lemay, who works as a financial officer in Quebec, where her family lives, said that when the brothers were diagnosed with the disease, it was a defining moment for them to make their trip around the world and fill their eyes with "visual memories ” before their eyesight deteriorates.
The family went on vacation in March without having a specific plan and so far they have visited Namibia, Zambia, Tanzania, Turkey, Mongolia, and now they are spending a week in Indonesia. They originally planned to start touring Russia and China in 2020, but that was canceled due to the coronavirus pandemic.
Documenting the trips on social media, she said it's wonderful to see how happy the children are and always together, but she also admitted that it takes a lot of effort and patience to be with them 24/7.